There is life with HIV

1º Soropositivo.org Editorial in August 2000

Welcome to Soropositivo.Org

1First day of December of 2000 is "celebrating" the world day to combat AIDS.
TV stations will not talk about something else; ditto radio stations and newspapers. Then it falls again into oblivion.
We sing this day, many victories. We had the same, with the active participation of communities and non-governmental organizations, many victories:
There are more drugs, tests are more accurate; research about vaccines have progressed a lot.
The person with HIV live longer and with a higher quality of life ...

I, Cláudio Souza, from Seropositivo.Org, am obliged not to agree with the higher quality of life.
Quality of life of life is not to be in good health, the costs of medicines.
Quality of life is up in the morning and face a bus, subway or train and get to work, perform a function, go to lunch with friends and go over some five hours of fighting and, therefore, plan ahead.
Quality of life is not having to hide the disease for fear of being discriminated against is not having to hide like a criminal just because a port virus.
Quality of life is to dream of a better future, to own a home, with marriage, family life.
And the basis of all this is the right to work, together with the right to health and equality. This is my fight, since I started this work in Soropositivo.Org
Our life can not remain a summary boxes of medicines and laboratory tests.
Our life can not be lived in orbit of illness or seropositivity.

The profile of people living with HIV has changed a lot and throughout this time

And Seropositivo.Org was here, documenting!

I've been here for all these years caring.

I work "in my creation", seropositivo.org, for unveiled love and, although I have just less than 600 published articles, I edited, translated, copied and pasted in one place, a little more of 4000 posts!

The History of AIDS, since the year two thousand is registered here and I dare to get me to say that the largest database on the subject, in the hands of a so-called ING - Non Governmental Individual - This has obvious implications. I keep this from my resources, mean, unpredictable and inconstant.

one of the Topos of Seropositive.Org
This is one of the countless moles that have been used in this blog. If you knew the reasons why I removed it, they would collide disastrously

The profile for the person who came with HIv and Profile of seropositivo.Orr

The HIV carrier profile has changed; and changed for the better. (This was already a reality established in the year Two Thousand)
Have not die as often. We are no longer hospitalized many times, have not developed the disease and, in fact, we are strong and healthy, able to work and social life.

There was an error early in the epidemic:

It was attributed to a specific group of people, whose conduct society has the habit of reproving without knowing, generally since some of the "productive members of our unique and exemplary model of society" used them, without anyone caring!

Created - if phrases like gay plague, gay cancer, risk groups. All wrong, untrue, discriminatory. All stigmatizing. And nobody undoes this error. All act as if nothing had happened.

Soropositivo.org seeks to clarify, since 1º of August of 2000


AIDS it is not a privilege (...) of a few. HIV is not selective at the time of "choosing" its host.
Whites, blacks, Indians, heterosexual women, children, gay, bisexual, either.
Anyone can get HIV and, if different, to develop AIDS.
But the vast majority, when he finds out, goes into treatment, recovers health and able to lead a normal life like anybody else.
But it is denied us. If an employer discovers that he has a patient with HIV on its staff, resigns - the, under any pretext, to get rid of future problems, which are theoretical.
This is because the employer does not want to take the risk of facing all the burden of the disease alone:
Admissions, licensing, to control absences, etc..
All this makes the person with HIV is considered an employee, an employee unattractive.
We must change that, creating tax incentives to those who employ the HIV-positive.

This was the primary reason forSoropositivo.org


Unemployed, we are a social burden. We are depending on public welfare, often precarious, our families, mostly low-income, and lose our life quality and expectancy.
Employees, take care better for our health, consume more, pay taxes and live happy, productive and independent.
Editor's note in 2018: Seropositivo.Org I got the support of an influential NGO, Ashoka Social Entrepreneurs, in the pursuit of this goal. Unfortunately, today I know, I got the help at the worst moment, because soon I had a sad depressive crisis, and I became mentally ill until I lost the support and thus I became mentally ill for almost six years ... Soropositivo.Org was the first site (or blog, as they wish) to receive support from Ashoka. Yes, I failed in my search, but I got it, for my work on this blog; Unfortunately I failed ...

The relationship between employer / empregado_soropositivo / government needs to change.
No use without creating a number of laws prohibiting the employer to dismiss HIV-positive; there are laws and laws prohibiting any number of things and they keep happening, even prohibited. Or a law banning drug trafficking ended with the traffic?

Rather, rather than simply "protecting" the HIV-positive person, through commendable legal provisions that punish the company and / or person who incurs the crime of discrimination, it is necessary to encourage the employer to maintain, through profit prosecutors, as I have already said, and by creating a bank of hours, the healthy and workable HIV bearer at his usual post. This was the initial idea when weSoropositivo.Org

Soropositivo.Org sought, for a long time, this concept of the right to work.

I longed to restart my life.

Today, 18 years later, I barely notice myself (11 / 05 / 2018)

Craft fairs, I insist, do not solve anything, since not all people have the manual ability to do this or are interested in such craft. This is a work, the craft, which asks for much more love of the "workshop" than what was necessary for me, when, on account of some misleading mistakes of the past And every person has the right to exercise his profession, to develop with their own merits and effort, often diuturno. The serological condition does not undo these merits. The way the individual "got" the virus also should not get into the question, as it does not change the quality of the professional in question for better or worse. It must always remain the condition of being human, worthy of respect, not of pity, above anything.

In the meantime, society needs to be made aware of the security of living with the HIV-positive person, the HIV-positive person ... the HIV-reactive condition is not a tragedy doomed to the fateful disaster:

"There is life with HIV"


The press in general owes this to the population, in their duty to inform and clarify. And, eight hundred thousand devils, she, the media, does not do that!

The awareness campaigns should be jackpots for those who understands the subject, for those who live it and who knows the subject thoroughly.

The social view of AIDS is mistaken. NOT die like flies. And do not transmit the disease by air, by shaking hands or social contact.
Sexual intercourse must be protected, but it is not only to prevent AIDS. It is to prevent syphilis, gonorrhea, hepatitis, condyloma acuminata and a myriad of STDs that are equally or more dangerous than HIV infection. Plus, avoid unwanted pregnancies, or worse, teenage pregnancy.

This social vision on the IDA needs to be right, corrected. And only the means of mass communication, in partnership with nongovernmental organizations and the Government is able to repair the damage caused by themselves and by the scientific community at a time when there was very little light on the problem.
My thoughts back then on how the "HIV epidemic" was seen and lived and I tried to make a difference with this blog
Do you consider that the population is adequately informed? Click here! But if this is not enough and you believesthat I am exaggerating and that the prejudice is not so great? =, please, please click here and then click here!
And yet you dare to believe that no one takes the risk anymore? Click Here and finally you, women sIs it safe because it lives in a "stable relationship"?
Click Here and reach the conclusion that it is not as safe as well.
Then look in the personal testimonials section for women who have contracted the virus of their husbands and who open their hearts here, in the hope that this will not happen again ...
AIDS is a problem for everyone, irrespective of gender or possible "way of life". AMs is no longer the death sentence or the "revenge of God" (...).

And you can change these things with awareness and enlightenment, information and goodwill.
We have excellent coverage, with respect to treatment, medication and tests, at least for now. But this alone is not enough. If we can live (and this is a natural right of every person) on health, we might as well work for our own sustenance and that of our families (we are fathers and mothers), we are not discriminated by our HIV status.

Of all the symptoms of AIDS, the worst of them still remains, after 20 years (now over 30), in a world where most have TV and Internet access, prejudice rages and free and silent, like the fire which burns under the tundra until it has the strength to carry the forest to destruction.
.
Urge that to change, and change for the better.
Claudio, Seropositivo.Org and all the team seropositive home page.
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