During the summer, as part of the project, 2BeatHIV filled with five people living with HIV from different cities, cultural origins and life experiences. We talked about their perspectives on what they experience with HIV and their thoughts about the virus and research for the cure of disease. We used Photovoice as a discussion method, encouraging participants to bring the photos for each session as a way to inspire stories and advice. The four main themes that emerged from our discussions were resilience, empowerment of faith, and empowerment of support - and the stories brought to light on these issues need to be heard. Photovoice is a method of group analysis that combines photography with grassroots social action and is commonly used in the fields of community development, public health, and education. Participants are invited to represent their communities or express their points of view, photographing scenes that highlight research themes. Common research topics may include community concerns, community assets, or health barriers and facilitators.  These photos are interpreted in a collaborative way, and narratives can be developed that explain how photos highlight a specific research topic. These narratives are used to better understand the community and help plan health or social programs that meet the needs of the community.
Photovoice is often used by marginalized groups to provide insight into how they conceptualize their circumstances and their hopes for the future. As a form of community consultation, photovoice attempts to bring the perspectives of those "leading lives that are totally different from those traditionally in the control of the world's imaging media"  to the policy-making process.  TO KNOW MORE CLICK HERE
Key points from individual experiences
Our first meeting was on a hot May morning. We are crammed into a library of books in the middle of stuffy and damp air. Under a fan in the bottom it seemed to be isolated from our space. CAARE, Inc. - an aptly named holistic vision of nonprofit health - were warmly received at our meetings. First of all, everyone was shy; the only thing that seemed to them to be a link was HIV infection. However, it created affinity quickly over the taste of apple and granola in the juice. In the coming weeks, the most valuable points have been incorporated into their individual experiences and advice to others living with HIV or not.
Joel, a former incarcerated recluse, lived with HIV for nine years and had only two people who knew her serostatus prior to the project. Shame does not dictate your privacy, he said, just was not "easy to leave." Joel explained that people misrepresent HIV. He said that living with HIV is just something to live with. He said, "If you're human, you have to live with something." Joel said, and it is to remember that you are not dying of HIV; You live with him.
Michael, a middle-aged man with reduced mobility, has served as a leading activist for people living with HIV for almost thirty years. As soon as he was introduced to his lodging, he often commanded the room; his experience was permeated by the history of that accommodation, he said.
Most of their work has been to try to deconstruct HIV-related stigma and to enthuse younger and infected people to "move on, no matter how ... and do the best." He often told other participants not to allow HIV to enter the path of aspirations, saying: "You can buy a house; you can be a doctor; you can be a lawyer; you can be anything. "
Tommy, an aspiring chef at the beginning of his 20s, brought a young and inspirational perspective to the conversation: He said that he had been "lucky", and he associated that with being a part of a younger generation and accepting. He remembered to tell his best friend after he was diagnosed. She told him, "You'll be OK. You are going to eat healthy and work out and you will be happy and you will be OK. "He said that people living with HIV had to find the right kind of social support. For him, he found the support of close family friends. If it requires finding the right support group setting or boundaries with those that are useless, it said it was necessary to "find the best people for you."
As a young woman, what impressed me most
As a young woman, I was hit harder by Debra and Angel. Both have stories of violence and sexual abuse, and they have battled racism, sexism and HIV stigma for decades. Their layered traumas are not uncommon: black women are disproportionately affected by violence in intimate relationships and HIV / AIDS compared to women of other racial or ethnic groups. When we speak of mental health, Angel spoke of the resilience she is used. She described the development of an impenetrable outer combat Depression And the stigma, "trying not to let anything tear [it]." As they spoke, the fourth sense of thickness with emotion, though pieces of pain and resilience clung to the moisture of the air, enter you with each inhalation. "Life is not easy for anyone," Debra said, "This is just another battle; you have no choice but to overcome. "
Their strength permeates their stories. From their diagnoses, both Angel and Debra have empowered themselves and others by ownership of their experiences. They are dedicated to talking about their HIV experiences in support groups, at schools and at events such as AIDS 2016 conference and fashion shows. Credit much of your determination for self acceptance and faith. Debra explained that she relies solely on her medicine, "faith in God and faith itself." She is currently developing a scripted woman to raise HIV and encourage safe sex practices. As an angel, "I have to make a difference with this disease ... I have to spread the word. I have to stigmatize. "
For people who do not live with HIV, Angel said, "Stop making us walk on egg shells." All people living with HIV should be able to speak freely about their experiences without fear of being marginalized or discriminated against, said she.
This is a critical time to transmit HIV positive voices. As human beings, we have something to celebrate. Major scientific and technological advances in HIV-related research over the past decade have enabled people living with HIV to live, productive lives. But as scientific innovations continue to evolve, people with HIV are still devalued, ignored and marginalized. What do we - the researchers, community members, friends, loved ones - do? Humanizing HIV. As a culture, we must stop separating ourselves from the disease and the people who live with it. Empower people with HIV, respect their voices and learn from their experience.
Samantha Farley is a student and researcher from Chapel Hill, NC. It functions as a part of the 2BeatHIV, a research group outside UNC Chapel Hill dedicated to creating ethically and culturally sensitive HIV cures research practices and empowering community members to raise their voice on HIV and HIV cure research. Samantha is currently studying the health policy and management of the Gillings School of Global Public Health. To know more: @2BeatHIV.
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What comes after the picture is not for you to think:
"Wow! How he suffered !.
It is for you to put in your head that it is possible to go through even more than that!
When I write that there is life with HIV is this and much more that I speak !!! Just like you, I am nothing but a human being. With a lot of determination is an incalculable love and especially Mara. After she dies, I can leave shortly thereafter without complaint.
I know! The shirt is awful. I tried this same smile with another t-shirt. But the reason for the smile was no longer around! 🙂 It really is. Yeah, that smile on me is rare