How is the self-esteem and self-esteem of today's adults born with HIV?

HIV

Are today's adults born with HIV living with low self-esteem?

Among people who were born with HIV and who have now moved to adult care at St Mary Hospital in London, 80% have undetectable viral load, increasing to 87% in people with 25 years or older, according to the data presented in consultation. British Association of HIV (BHIVA) and British Association of Sexual Health and HIV (BASHH) in Edinburgh last week.

Improves self-esteem with age progression despite HIV

While a significant minority find it challenging to join and deal with serious illness, the situation tends to improve as people age, the conference heard.

In addition, data from the UK Stigma Survey of People Living with HIV showed that young people were more likely to have a positive and better self-image

A couple hypothetically HIV positive, seeking to represent almost parirade of people of both sexes, and young people, living with HIV ... Can anything love? ... (...) ...

diagnosis than other adults living with HIV.

An entire generation of HIV born

A generation of children who have acquired HIV in the womb, during childbirth or through breastfeeding, has now grown. At the same time, thanks to effective prevention during pregnancy and childbirth, very few new infections occur in babies. (In Cuba they have not been born for some time)

1996 - The "Cocktail" comes up! (Combination therapy with protease inhibitors - "The New Remedies" -)

In 1996, more than nine in ten of those who had HIV in childhood they were still less than ten years old. In 2016, more than seven in ten of this group had 15 years or more.

Adolescence can be a transitory and turbulent period of biological, psychological, and social changes.

Stigma, Sexually Transmitted Infections and Minor Attention Health Care

This can be further complicated by having a health condition - especially one that is stigmatized and sexually transmitted. Studies around the world have shown that adolescents generally have less involvement in care and worse outcomes than other people living with HIV at all stages of the HIV treatment cascade.

The studies presented at the conference are a little more encouraging.

We can already see, on the horizon, a better future for living with HIV ... If there is a cure? Well, I, Claudio Souza, would not dare say that. Not now, in April of 2018, not now ...

Clinical search results at St Mary's

Loneliness, a sad reality for many people with HIV

Dr. Caroline Foster presented data from St Mary's, London's premier hospital for the care of children living with HIV.

During adolescence, care is "transferred" from the family HIV clinic to a youth clinic that is located in the adult HIV department. This is a gradual process in which the youth is supported to take more responsibility for managing their own health care. The youth clinic is composed of a physician, clinical nurse specialist, support worker, psychologist, nutritionist and pharmacist.

The review included all 182 patients who and who made the transition to the youth clinic between 2006 and 2017. Their current ages vary between 18 and 33 years, with half having 22 years or less. Just over half are female and 85% are black African.

Retention in care has been very good, with 158 (87%) still attending HIV services at St. Mary's.

Sixteen people transferred their care to other services, four were lost to follow-up and four died. Foster attributed success to the holistic care provided and lowered the barriers for young people to become involved in care - for example, not having to make a commitment. Observation in the Final

All but one (157 of 158) are being treated for HIV, 80% (127 158) have undetectable viral load and the mean CD4 cell count is 626 cells / mm 3. Among those with 25 years or more, 87% (39 of 45) have undetectable viral load.

Difficulty in adherence to treatment

Although many people in late adolescence and early 20 years of age have difficulty adhering to medication and engaging in care, things generally

HIV and Side Effects

Well, I know this image does not always reflect reality. It can be much worse, and it may not be any of that. This thing of side effects ... well, the remedies that I, Claudio souza, my wife, Mara, Beto Volpe, Paulo Giacomini, Beatriz Pacheco, self called HIVéia (...), and the crazy one is me, Sílvia Almeida and so many other people, like Veriano Terto Jr, I believe or mea culpa, mea culpa mea maximus culpa, remind me of the old graphite, in the old square Roosevelt: Why or belch, if I can very well vomit ... because it is ... everything is a matter of optics, visualization and courage !!! The remedies of today remind me a lot of that Tang, who in Sunday meetings of families gave a lot of heartburn, only to misunderstand the cook ... mea culpa, mea culpa, mea maxima culpa.

patients are in their twenties. "

They even run out of mind, but sometimes you have to be creative enough to support them in that period, "Foster said.

Undetectable Viral Load

This was corroborated by an analysis of the adolescent clinic at another London hospital, the Mortimer Market Center. Among those in late adolescence, only about 30% have an undetectable sustained viral load.

Between the ages of 20 and 23 years, something between 50 and 60% are undetectable. The ratio is steadily increasing until it reaches 100% at 28 years, where it remains.

Returning to the St. Mary's cohort, although most have good results, a significant minority has difficulties.

Twenty percent currently have a detectable viral load and 11% A Count of CD4 Cells Below 200 Cells / mm 3 .

Lipodystrophy

1Many have had complex histories of treatment, including prior use of suboptimal regimens, resulting in resistance to multiple classes of medications and treatment side effects. Six have had surgery for lipodystrophy.

Spending or having previously spent more time with uncontrolled HIV creates serious health problems for some young people.

Nine percent (14 of 158) had an AIDS-defining illness during adult care, including wastage associated with HIV, sepsis, and opportunistic infections.

Incidence of Cancer

The incidence of cancer (especially blood cancers, Hodgkin's lymphoma and non-Hodgkin's lymphoma) is much higher than that seen in young people in the general population.

Most cancer patients have a long history of low adherence to HIV treatment.

Mental health difficulties are also common - 33 has depression and / or anxiety, eight have psychosis, six have drug or alcohol dependence, and four have learning disabilities.

However, this seems to be linked to the challenging social circumstances in which some of these young people grow, rather than specifically related to HIV itself.

O AALPHI study compared these questions in HIV-positive adolescents and adolescents who had HIV-positive family members but did not have HIV and found no significant differences between the two groups.

More encouraging, 16 patients are now parents for a total of 25 children, none of whom have HIV.

Incidence of Cancer

Risk of cancer

Fear, as the worst enemy, is certainly the most damaging and destructive of feelings. Not even hatred, which sometimes leads a person to real insanity, can bring benefits. In a small, silly and fleeting quote, the micro-ondans oven and direct son of 2 the World War. The Fact was that something else was being studied, a means of "blinding the radars of the enemy. Els never got it, and D-Day, with the landing at Dunkirk, used N other resources, like small boats pulling huge metallic balloons, in the successful quest to deflect the defensive forces in another direction. That is a fact, but those studies ended, finally, by allowing the theories that would lead to the mycobond. Is it a rough example? Yes. But I want to compare hatred and fear and, as it turns out, something "good" arose in the war research - the tomographer too - but fear paralyzes. And paralysis in the face of an illness is a waterslide for disaster

The incidence of cancer (especially blood cancers, Hodgkin's lymphoma and non-Hodgkin's lymphoma) is much higher than that seen in young people in the general population.

Most cancer patients have a long history of low adherence to HIV treatment.

Mental health difficulties are also common - 33 has depression and / or anxiety, eight have psychosis, six have drug or alcohol dependence, and four have learning disabilities.

However, this seems to be linked to the challenging social circumstances in which some of these young people grow, rather than specifically related to HIV itself.

O AALPHI study compared these questions in HIV-positive adolescents and adolescents who had HIV-positive family members but did not have HIV and found no significant differences between the two groups.

More encouraging, 16 patients are now parents for a total of 25 children, none of whom have HIV.

Stigma and self-image

1Given the challenges of growing with HIV and the mental health issues just mentioned, it can be assumed that young people living with HIV experience more stigma and self-stigma than older adults living with HIV. This is not necessarily the case.

People with HIV Stigma Surveys UK (UK) compared the results of their main research, which recruited 1450 adults with 18 years or more, from those of an additional research with young people.

The latter recruited 300 people living with HIV, aged 15 and 24 years, including 29% who acquired HIV sexually rather than at birth or breastfeeding. Participants in both studies were recruited through care clinics for people living with HIV and community organizations.

Unsurprisingly, youth research includes more black participants from African backgrounds, less men who have sex with men, and more participants who are not sexually active than the main research.

Four questions were asked about positive feelings about HIV:

  • They felt themselves to be in control of their health;
  • They felt as good as anyone else;
  • They felt positive about the future and
  • They felt positive about life. For each, about 60% of people in the main survey reported positive feelings, compared to more than 80% of people in youth research. In each case, the difference was statistically significant.

Five questions were asked about negative feelings about having HIV:

  1. Shame;
  2. Fault;
  3. They blamed themselves.
  4. If you blame yourself and others ...
  5. Of their possible low self-esteem.

These three things destroyed me, 24 years ago. When I arrived, with a guilty spirit, shame and FEAR and when I, disappeared three months ago, given as "dead by AIDS" and "resurfaced" thirty-five pounds leaner I consolidated the theory of all:

To them, dead or not, I was with AIDS and the public nickname began.

If I had had the courage to "be myself and"defend myself, "saying simply AIDS is your mother!

They would have been surprised. Being myself I would not have reacted as I reacted:

"Petrified."

All what came next, would not have occurred, if I had the ability to, at that moment, be who I was (note, I've changed a lot after the incidents narrated in the previous link's destination) and probably this site would not exist either and I would still be the same shit forever and I would not have had the possibility of serving, even briefly, the Waldir.

1

And I would not have the possibility to know this person, who is the true light of my eyes

Likewise, young people were less likely to report negative feelings (especially the first three problems), with these differences also being statistically significant.

Young people also reported fewer experiences of stigmatization in health care than older adults.

These findings seem to agree with those of Positive Voices (in translation) where respondents were found to have a better quality of life than other people living with HIV. Those born with HIV were the only group to have scores comparable to those of the general population.

Translated by Cláudio Souza in April 28 of the original 18 in:

What are the outcomes for adults who were born with HIV?

Written by Roger Pebody

Review of the Portuguese version by Mara Macedo

Your 25 April 2018 English version is released

The Portuguese version of Brazil was published in 28 May 2018 - Understand that all this delay is due to lack of resources

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