December First: A Day of Struggle
In year two thousand, in August, I created this site, seropositivo.org and, to give the impression that there was "a working team" I finished the
greetings with "the entire seropositivo.org team".
The fact is that there was, at the time, and there was, until today, a "team".
Here's a partnership: God and me ... And sometimes, me and God ...
But this was my first editorial for December 1 of 2000 and I think that the year of 2019 will be a year with the restart of "certain fights".
And I learned that this is a day of struggle with a person for whom I have rendered some services and, in his words, opted not to accept my friendship. Yeah, he seems to have considered it inefficient (maybe he's a Borg, I do not know). Maybe nasty. I do not know. or little enriching. Each one knows the pain and the delight of being what it is.
I do not knock twice on a person's door, with this intention, a second time. And I do not really like the idea of reconsidering other people's decisions that make me feel pain. Pain, for me, is enough for peripheral neuropathy that, in addition to chronic, seems to me irremediable.
Already the other pains ...
What has been won can be undermined in, say, a "pen" or two, and I do not know which of us will have to start over this fight. Years ago I broke a * friendship * with a person who was evidently against the treatment of seropositive persons, in a "conversation" whose content was more or less this:
- "Brazil is the only country that sponsors".
- "Based on this talk, for you, me and Mara, dead, makes no difference" !?
- "Let's not hit the front" ...
- "We already hit" ....
Then I blocked it in MSN Messenger. Unfortunately it is a mere sample of a "collective thinking"(...) and, I can bet, he's still alive!
Morning December 1 of 2000 it "celebrates" World Day of fight against AIDS.
TV stations will not talk about anything else; radio stations and newspapers. After, the subject falls, again, into oblivion.
We sing this day, many victories. Tvemos same, with the active participation of communities and Non Governamenais many victories:
There are more drugs, tests are more accurate; research about vaccines have progressed a lot.
The person with HIV live longer and with a higher quality of life ...
December first is more than that
I am forced to disagree with the higher quality of life.
Quality of life of life is not to be in good health, the costs of medicines.
Quality of life is up in the morning and face a bus, subway or train and get to work, perform a function, go to lunch with friends and go over some five hours of fighting and, therefore, plan ahead.
Quality of life is not having to hide the disease for fear of being discriminated against is not having to hide like a criminal just because a port virus.
Quality of life is to dream of a better future, to own a home, with marriage, family life.
And the foundation of all this is the right to work, plus the right to health and equality.
Our life can not remain a summary boxes of medicines and laboratory tests.
Our life can not be lived in orbit of illness or seropositivity.
The profile of patients with HIV has changed, and changed for the better.
Have not die as often. We are no longer hospitalized many times, have not developed the disease and, in fact, we are strong and healthy, able to work and social life.
December First Is A Day To Charge Rights
There was an error early in the epidemic:
It was attributed to a specific group of people whose conduct society has the habit of reproving without knowing it.
Expressions such as gay plague, gay cancer, risk groups were created. All wrong, liars, discriminatory. All stigmatizers. And no one undoes this error. Everyone acts as if nothing had happened.
AIDS is not the privilege of a few. HIV is very selective when it comes to "choosing" your host.
Whites, blacks, Indians, heterosexual women, children, gay, bisexual, either.
Anyone can get HIV and, if different, to develop AIDS.
But the great majority, when it discovers, enters in treatment, recovers the health!
And can drive "a normal life ", like that of any person.
But this is denied us. If an employer finds out you have an HIV your staff, dismiss him under any pretext to get rid of future problems, which are only theoretical.
December First Nearly One Day of "Setting Accounts"
This is because the employer does not want to take the risk of facing all the burden of the disease alone:
Admissions, licensing, to control absences, etc..
All this causes the HIV carrier is considered an employee, an unattractive worker.
We must change that, creating tax incentives to those who employ the HIV-positive.
Unemployed, we are a social burden. We depend on the public assistance, almost always precarious, of our families, almost always of low income, and our life loses in quality and expectation.
Employees, take care better for our health, consume more, pay taxes and live happy, productive and independent.
December First Is For This: The Employee / Employee Relationship Relationship / Government Needs to Change.
The Worst Symptom Is Prejudice
No point in creating an endless number of laws that forbid employers to dismiss HIV-positive; ha laws and laws prohibiting an endless number of things and they keep happening, even prohibited. Or a law banning drug trafficking ended up with the traffic?
On the contrary, instead of simply "protect" the HIV carrier, through legal provisions, laudable of course, that punish the company and / or person who incur the crime of discrimination, we must encourage the employer to maintain, through tax benefits, as already said, and by setting up a bank of hours, O HIV-positive and fit to work in his or her usual post.
Craft fairs, I insist, do not solve anything. Not all people have the manual ability to do this or are interested in such an occupation. And every person has the right to exercise his profession, which he learned to develop with his own merits and effort, often diuturno. THE serological condition does not undo these merits. The way the individual "got" the virus also should not get into the question, as it does not change the quality of the professional in question for better or worse. It must always remain the condition of being human, worthy of respect, not of pity, above anything.
Meanwhile, society accurate be made aware of the security of living with the HIV patient through the media.
The press in general owes this to the population, in their inform and clarify.
The awareness campaigns should be jackpots for those who understands the subject, for those who live it and who knows the subject thoroughly.
A social vision of AIDS is wrong. We do not die like flies. And we do not transmit the disease through the air, by handshake or social contact.
Sexual intercourse must be protected; but is not to avoid "just AIDS" (as if the rest did not matter), is to prevent syphilis, gonorrhea, hepatitis, condyloma acuminata and a myriad of STDs.
As or more dangerous than HIV infection. What's more, it avoids unwanted pregnancy or, worse, teenage pregnancy.
This social view on AIDS needs to be right, corrected. Only the mass media, in partnership with non-governmental organizations and the government, can repair this damage caused by themselves and the scientific community at a time when there was very little light on the problem.
Do you consider that the population is adequately informed? Click Here.
Believes that no one dares more? Click Here (are old news)
Sit - be safe because he lives a "stable relationship"? Click Here (it's old news) will come to the conclusion that it is not so safe.
December First Is For This: We Remember The Ques We Are And Reinforce What We Conquer.
Then look at the testimonials section personal stories of women who have contracted the virus from their husbands and who open their hearts here in the desire that this does not repeat ...
AIDS is everyone's problem, without any possible distinction of gender or "way of life". But it is no longer the death sentence or the "revenge of God" (...).
And it is possible to change these things with awareness and clarification, information and goodwill and empathy.
Of all the symptoms of AIDS the worst of them still remains, after thirty and "so many" years, in which most have TV and Internet access, prejudice.
Something I try mirror me ....