What is it like to live with HIV
Living with HIV is living !!! To live with HIV, you, who have just been diagnosed, must understand that if you try hard, and know how to accept and accept that life, however difficult it may be, life is always worth living, even if one day each time, especially nowadays, in the beginning of the 20s, so many people researched what life in the vintages would have been like, well, here they are! Long live the twenties, with HIV!
When I say that there is life with HIV I do not invite the nonreactive: I agree the reagent to the important:
React and understand that, yes, yes, yes, yes! There is Life with HIV!
And this is not an invitation! IF you use what I say to say you are influenced, you are a paspanata, period! Who is settling his soft talk in my battle as God knows who he will have been, then, why!
Yes, like that, syllable after syllable: Re-a-gir! When I ended up in the support house in the chaos of the dark 90s, I spent fifteen days in bed, prostrate. Beaten. Defeated.
Not by the virus, not by HIV. By me. For my fear, for my shame. For my cowardice. For my defeatism.
One of the administrators of the Casa de Apoio, at a time when the administrative disaster was approaching, caught my attention, saying:
React, start waking up now or you will not be able to live with HIV, you will be dead. WAKE UP and build your story! Start living with HIV to try not to die BECAUSE OF IT!
It is possible to live with HIV. But you need to want
You've been in this bed for fifteen days! IF YOU DON'T REACT NOW, NO ONE WILL REACT FOR YOU! You will be dead in life! React.
That simple! It is obvious that, apart from prejudice and some political threats, living with HIV is like living anyway.
People live and die, this is the natural process of things in this world! And people die in the most varied ways! With absurd reasons and events, completely disconnected! This girl, your name?
Her name was ... Yes, yes!
Cláudia. She had discovered a few weeks ago about her serology that way.
The Husband fell ill! Gravely ill he did not last more than two weeks and, say, lost his life.
This girl, Cláudia, with a dark and shiny complexion, materialized from me completely destroyed and told me her story.
She asked me to stay with her for a weekend and I stayed.
Pasting that singer, I believe that “Rosana” there was nothing: Not a touch!
But she couldn't take two months and so she just died! The emotional lack of preparation made her crumble inside.
She didn't want to, didn't know, I believe, how to start her story about Living with HIV!
So, emotionally ruined, with a CD4 cell count of over 900, I had the distinct impression, and I may be “oval-shaped”, I had the impression of having seen her give up on life and thus, giving up, she left this world.
Whatever you think, if you don't establish a zone of emotional balance, I don't think there can be only one soul who can, without being afraid of making mistakes and, in fact, being a candidate, can be prepared to be able to write a book with this title:
I discovered AIDS in my life and I was happy anyway, without any major complaints.
With me not guitar!
And yet they ask me:
What is it like to live with HIV? How is it to live with or AIDS?
Some people ask me about it, and from my point of view living with HIV is normal! However, complicated!
You see, the complications are not limited to the organic problem, where, between comings and goings each one knows the pain and the delights of being what he is!
There are other implications and injunctions, many of which also travel through social limitations, problems of living together, fear of prejudice, and other very unpleasant aspects.
The Virtual World Helps a Little
And especially within this “almost” fully computerized world as it is today. And there's more! We have, today, a fool in command of a country of continental proportions that considers us, and with me I mean the people living with HIV, as a “big problem and big expense! For the country.
One of our great expenses is seen among a group of people who, as “special people, work from Tuesday to Thursday, for a salary of almost R $ 30.000,00 / month plus benefits, not to mention cards corporate credit cards. People living with HIV are not problems, they are people. Like this
Just to get an idea, today, in Brazil, about 250 thousand people live with the virus of the AIDS and do not know of their existence in their bodies. Thus, unconscious sexual practice can further increase the incidence of those who have viruses.
They are people living with HIV and without treatment!
As the health professionals themselves say, the main problem for them is not the contamination with the virus, but the discrimination they suffer.
Only at Emílio Ribas, São Paulo's infectious disease hospital, which is the largest in all of Latin America, 500 HIV tests are performed each year, with a result is positive every three days at the hospital.
In the same hospital, 185 children are hospitalized, victims of the AIDS virus. Children end up getting the disease during pregnancy by the infected mother. Nowadays, there are a number of treatments that prevent a child from getting the virus during pregnancy, but even so, many unsuspecting mothers may simply not have access to this resource because, although it is required by law, not all doctors ask, in prenatal care, by the HIV test, which causes one more infection in the family.
It is mandatory by law to take the HIV test in prenatal care
But, the child infected with the AIDS virus, nowadays, he has a normal life that can be easily resembled the life of a child who does not have the disease. The child can play normally, he can have fun, he can go to school, play with friends and animals, and do whatever his stage allows. But, for everything to go well, it is necessary to warn parents that medication should always occur.
The general expectation is that 630 thousand people are contaminated with the AIDS virus in Brazil. And even after several advances in regard to treatment, shortly after discovering the disease the main fear of those infected is prejudice and social discrimination.
Life After Virus Discovery
It is in the midst of some symptoms that the patient first seeks the doctor with suspected acquisition of the acquired immunodeficiency syndrome virus. What was once a simple flu, begins to become much stronger because of the immune system of the individual, dominated by the infection of AIDS.
Thus, many of those infected with the AIDS virus discover the disease when they feel the worsening of symptoms in the treatment of diseases, whether simple or not.
HIV testing is carried out free of charge in hospitals throughout Brazil, as the fight against the disease is very important for the government, the World Health Organization and many other agencies that fight against the manifestation of this virus.
And so, with such fear, it is possible to live with HIV. There is life with HIV And, with the result in hand, the disappointment with the positive result is very different from the reception of the past.
In 1983, nurses and doctors were faced with a new disease affecting Brazilians. And, they knew nothing about it. Thus, patient treatments were performed with the use of gloves and masks. Patients at that time died within days or at most months, after all, there was no treatment for the disease and scarcely knew how it acted in the human organism, its appearance being one of the greatest shocks to humanity.
What has changed since 1983? All
From that year on, it was rumored that AIDS was a disease transmitted by homosexuals, because of transmission through anal sex, which led to the discovery of the first cases.
Thus, since then, it has been associated with the disease with the fact that the infected individual would probably be a homosexual, which was not always true. Sexual intercourse between men and women could also lead to the onset of the virus, as well as transmission through infected syringes.
However, the prejudice is still great. In general, within the subconscious imagination, this is a disease for people with unruly lives, who “deserve to be sick”. Cases among older people have grown precisely because in their minds aids it is part of this picture and a person over 60 years old hardly makes an HIV test "of free choice"; it only does this when the disease has progressed and infections and other opportunistic illnesses appear, but then it may be too late and it is important to carry out an awareness campaign aimed at this age group.
More than 30 years after the discovery of the virus in Brazil, advances in medication and prevention were great, and the results are also positive.
In the past, the only form of treatment was through AZT monotherapy. The medication was actually very heavy, which caused many side effects. In addition, there were many doubts about the quantities to be taken, hampering the full effectiveness of this method.
In addition, the drug caused a reaction that left people with shades of lead-ash, and because of that, this was another label of "infected individual." And then, the fear of taking the drug was also loaded with social issues: knowing that you were contaminated, they soon associated you with marginalization, the life of a sex worker, homosexuals or even drug users using it through syringes. These factors further aided in the decision to hide the disease to its fullest extent.
Life with HIV and sexuality
There are those who say that the AIDS virus has also incorporated another name "the virus of morality". By acquiring it, infected individuals feel fear of passing the disease beyond, being responsible for another infection.
At first, many then become "asexual". He is afraid of sexual intercourse, is afraid to tell anyone who is the partner (especially among those who get HIV early, and were not married, for example, at the time of the discovery, since this makes serious future relationships difficult); is afraid to "ruin" the life of yet another person who might be living in a good one but is infected with the AIDS virus.
These are the main points pointed out by those infected with HIV who, even if they are discovered as HIV positive, are afraid of ending their sexual relations, mainly because the other individual is afraid of becoming involved and eventually becoming infected, even if they are infected. sex with a condom does not transmit the virus. In oral sex, for example, it is enough to use a condom or a plastic film of PVC in the woman so that it can also be carried out normally.
With regard to kissing and caring, they are released to HIV-positive people. Kisses can only be prevented for some time when either of them is cut in the mouth.
Meanwhile, in Brazil
According to updated data from UNAIDS, a United Nations program to combat disease, approximately 40 million are individuals infected with HIV. Of these, about 1,6 million are spread in Brazil, where Brazil represents just over 600 thousand infected, living with either the disease itself or the virus.
However, the advances with respect to the Brazilian territory are well signified, especially if compared to other countries. Here, the supply of drugs for the treatment of the disease is a national program, which is worldwide reference and has been under law for more than 10 years.
For the fight against HIV, today the Ministry of Health has 16 differentiated antiretrovirals for free in the public health network. These medicines are responsible for preventing the multiplication of this virus, as well as delaying to the maximum the signs and symptoms of the disease.
Because of this, the patient with the positive diagnosis of the present day lives a totally normal life - if it were not for the petrified discrimination that still surrounds society.
The life of the patient, after the appearance of the cocktail, has practically no restriction.
On the other hand, the Ministry of Health itself, which has a National STD and viral hepatitis program, states that the virus transmission rate is still very high in the country, considering 19,8 contaminations for each 100 thousand Brazilian inhabitants.
The development of the disease, from time to time, is more frequent in women. In men, in turn, this rate decreased greatly among men with ages ranging from 13 to 29 years. The decrease in the appearance of the virus in children younger than 5 years of age is also remarkable.
Thus, it is perceived that, mainly in the Brazilian territory, the advances regarding the treatment and the policies that define the free distribution of the same are very significant, which should make the life of the seropositive, in theory, as normal as of others.
But the main problem is discrimination, the factor that most certainly harms the insertion of this individual again into society.
The children documented in a special work in the hospital in São Paulo already mentioned previously, barely know what the disease is, and the daily treatment offered to them, allows them to lead a normal life. But when talking to the little ones, it is understood that they know of the risks of telling the disease to some school friend, for example.
Even children are already impregnated with this prejudice that has taken over society. Even when people will not understand that people with HIV can also lead a normal life?
The growing computerization has already brought the population the necessary knowledge to accept and help the inclusion of the HIV positive in society, what is their main fear after a positive test.
Meanwhile, young people who have been infected with the disease, are afraid to tell their friends. Fear even from the family. Fear of relating. Fear of loving, of wrapping, of falling in love. Nowadays HIV infection can not yet be cured, as it is a chronic, progressive disease that affects the human immune system. However, intensified treatment enables the infected person to live their own life normally, just like you or anyone else.
However, the prejudice and discrimination that circulate it should have been extinguished a long time ago, but they are still impregnated in the workplace, college, the streets and everywhere. The relationship should be normal, just like any other. With regard to sexuality, protection enables normal sexual intercourse between a seropositive person and an individual who does not have the disease without the transmission of the virus occurring.
Again, life with HIV
Of course, as you read this title, you must have considered the "suffering" life that the patient has. Of course it does not cease to be, after all, no one gets such an illness because he wants to. However, it has already been noted that the patient infected with the AIDS virus can and should lead a normal life, inserted in society.
Amazingly, what most affects and infects the HIV-positive is discrimination, which occurs in a variety of ways and virtually everywhere. Living with the AIDS virus has long ceased to be a health problem and has become a problem of society, a problem of insertion, of placement in this environment.
The life of the HIV patient is not easy. He must still live with impregnated prejudices, old and without scientific foundation, as well as protect themselves against those who abuse discrimination.
We know, or at least should know, that a person's health is built not only for physical integrity, but also for his morale, his mental and emotional health.
Treatments, advances and medicines have made it possible for the patient infected with the HIV virus to regain their physical health, that is, the integrity of their body, the improvement in the treatment of diseases and the delay in their appearance.
But if you have a disease that still affects society as a whole and hinders the improvement of the mental health and emotional health of HIV-infected people, it is certainly discrimination.